Nail biting, foot taping anxiety in the man next to me makes me wonder what his story is. Is he a previvor or a survivor? It helps having someone else with me even though it is just a blood test. Heaven knows what “real” patients are feeling.
Hopefully coming with my daughter as often as possible has helped her. I’m looking forward to her “trying out a new recipe” on me next weekend for Father’s Day. It is a real bonus for her to still be cooking lunch 4 years after her diagnosis with advanced breast cancer. Only a tiny percentage of BC diagnoses are in teenagers, even with BRCA2 that’s pretty unusual. So Father’s Day lunch is a very special treat!
Her diagnosis was the reason I was tested formally. My daughter had the gene and my mother had the gene but I was still shocked to find out I had it too.
Finally I am going in… the hot chocolate is not as effective as I’d hoped. They get a vein at the second attempt but it is slow, so only 1 vial today. That’s enough for my test but nothing for the researchers to investigate. I’ll be back next year to give more. Lunchtime is spent comparing “pin holes” with my son, as he has given blood today too, for a different reason.
The good news is that funding for the research project has been extended for another 5 years, so I can contribute for another 9 years. I am part of the Impact-Study These are the initial results…Impact Study Initial Results …
“Men with a BRCA2 mutation are known to be at a higher risk of prostate cancer of approximately five- to sevenfold, whereas the risk of prostate cancer in men with a BRCA1 mutation is less clear. However, there is an indication that BRCA1 carriers may have approximately double the risk of prostate cancer than that observed in the general population for males aged <65 years”.
There is also a little bit of good news buried in the results …
“This data from the IMPACT study adds to the increasing evidence that BRCA mutation carriers develop more aggressive disease. Although these are early results, it appears that PSA screening is more accurate at predicting potentially aggressive prostate cancer among men at higher risk of the disease due to a genetic predisposition than general population screening. This study provides support for continued screening in men with genetic mutations.”
So if you have a BRCA gene – get your PSA checked!